Multiple Sclerosis

[Guest]

Title: Re: Ebstein Bar Virus linked to MS? !!!! DOCTOR PLEASE RESPOND!!!!! HELP!!
Post: I HAVE THIS SAME QUESTION I WAS DIAGNOSED WITH EPSTEIN BARR IN 1994 AFTER GETTING WHAT FELT LIKE THE WORST COLD I EVER HAD AND WOULDNT GO AWAY..THEN THE FATIGUE HIT THAT I WOULD NOT THINK TO DESCRIBE AS FATIGUE CAUSE IT FELT MORE LIKE I WAS GONNA DIE...THE FEAR OF THE BAD FEELING IN MY BODY LEAD TO ANXIETY ATTACKS WHICH DIDNT HELP IN THE DOCTORS TAKING ME SERIOUS ABOUT SOMETHING BEING WRONG..SEVEN MONTHS LATER I WAS DIAGNOSED WITH EPSTEIN BARR VIRUS AFTER TELLIN A DOCTOR EVERY SYMPTOM WENT BACK TO THIS COLD AND I HAD NOT BEEN THE SAME SCINCE...NOW I HAVE IT AGAIN...ONE DAY I FELT LIKE I WAS GONNA PASS OUT AT WORK...AND I THOUGHT IT WOULD GO AWAY BUT SIX DAYS LATER IT DIDNT...AND I WENT TO THE DOCTOR ..IN THIS CASE I WAS LUCKY THAT I KNEW WHAT EPSTEIN BARR VIRUS FELT LIKE AND TOLD HIM THATS HOW I FELT...CAUSE HE DIDNT BELEIVE THAT WAS IT EVEN THOUGH I HAD IT BEFORE AND KNEW WHAT IT FELT LIKE..I ALSO QUESTIONED IF IT WAS THAT..BECAUSE I DIDNT KISS ANYONE THIS TIME...AND I HAD NO CLUE IT COULD COME BACK...THE TEST CAME BACK POSTIVE AND I HAVE BEEN SICK SCINCE ..IT HAS NOW BEEN ABOUT 10 MONTHS..WITH EXTREME WEAKNESS ..MUSCLE ACHES...FATIGUE..THROAT INFECTIONS GLAND SWELLING..FEVERS ETC...DURING THIS TIME MY DOCTOR HAD SENT ME EVERYWHERE TO RULE OUT ANYTHING ELSE CONTRIBUTING...MY BROTHER DIED FROM NON HODGKINS LYMPHOMA WHEN I WAS 13 AND I KNOW THERE IS A LINK TO LYMPHOMA AND EBV....SO IVE SEEN A HEMOTOLGIST ..HE RECENTLY SENT ME TO HAVE A NERVE CONDUCTION VELOCITY TEST THAT HAS NOW COME BACK AS SHOWING MILD POLYNUEROPATHY WITH SLOWING OF MY POSTERIOR TIBIAL MOTOR NERVE BILATERALLY AND MY RIGHT PERONEAL NERVE..MY LEGS ARE VERY WEAK AND THEY TWITCH ALOT AND THEY HURT ALL THE TIME..I HAD POLYNUERITIS WITH MY LAST BOUT WITH EBV....WOULD THAT CAUSE POLYNUEROPATHY? OR DOES EBV CAUSE IT? AND WHAT CAN I EXPECT IN THE FUTURE KNOWING THAT I HAVE POLYNEUROPATHY?..I HAVE ALSO READ ON THIS SITE THAT EBV IS LINKED TO GUILLIAN BARR SYNDROME...IS IT POSSIBLE TO HAVE A MILD CHRONIC FORM OF GUILLIAN BARR FOLLOWING AN EBV VIRUS? COULD THE NERVE CONDUCTION STUDY INDICATE GUILLIAN BARR OR MULTIPLE SCLEROSIS?? IS EBV LINKED TO MS??? I PRAY NOT BUT AFTER READING THIS SITE I GET THE FEELING THE ANSWERS DONT COME EASY TO ANY OF THIS AND IT TAKES ALOT OF TIME AND DOCTORS AND TESTS TO MAKE IT ALL COME TOGETHER...I KNOW THAT THERE IS SOMETHING WRONG WITH ME BESIDES EBV ...CAUSE IM NOT GETTING BETTER AND THE WEAKNESS IS GETTING WORSE..THE WORST PART OF ALL IS IM ENTERING THAT YEAR TIME AND RUNNING OUT OF TIME BEFORE I HAVE TO RETURN TO WORK(THIS HAS MADE ME UNABLE TO WORK) AND I DONT HAVE ALL THE ANSWERS YET AND IM NOT BETTER YET ..BUT WORSE.

ANY SUGGESTIONS OR COMMENTS WILL HELP I FEEL LOST IN QUESTIONS WITH NO ANSWERS AND OVERWHELMED AT THE FACT THAT IM NOT GETTING BETTER

[Guest]

The manifestation of EBV are not fully understood. It sounds like a full work-up into what might be the cause of your peripheral neuropathy would be in order. MS is a disease if the central nervous system (brain and spinal cord), and not the peripheral nerves. If appropriate, MRI studies of the brain may be in order, but your neurologsit would be the best person to determine this. He or she could correlate the EMG/NCV findings with your exam and symptoms. Good luck.
[quote] Title: Re: Ebstein Bar Virus linked to MS. ... [/quote]

[Guest]

THANK YOU SO MUCH FOR RESPONDING SO QUICKLY ...WHEN THE DOCTOR ORDERED THE NERVE CONDUCTION TEST HE TOLD ME IT WAS A PART OF RULING OUT MS...I HAVE BEEN ON THIS SITE READING FOR HOURS NOW AND I SEE NOW THAT IS NOT THE TEST MAINLY DONE TO RULE OUT MS...I WILL ASK HIM AT MY NEXT APPT ABOUT AN MRI..I KNOW THAT I HAVE EBV ALREADY BUT NOW THAT I KNOW I HAVE POLYNUEUROPATHY I WANT TO KNOW THE CAUSE OF IT..ALL MY DOCTOR SAID IS IT COULD BE A NUMBER OF THINGS THAT CAUSED IT AND THAT WE WOULD HAVE TO WATCH TO SEE IF IT GETS WORSE...BUT I WANT TO START LOOKING INTO POSSIBLE CAUSES ALTHOUGH AFTER BEING ON THIS SITE I SEE THAT IT MAY NOT BE THAT EASY TO FIND THE CAUSE..I JUST WENT THROUGH THE WHOLE SITE ON MS AND I SAW A POST FROM SOMEONE SAYING THEY HAD MONO AND THEN THEY WERE LATER DIAGNOSED WITH MS ..THIS HAS ME WONDERING IF THEY ARE LINKED IN SOME WAY...I KNOW THERE IS ONLY SO MUCH YOU CAN TELL ME ON HERE...BOTH TIMES I GOT THE DIAGNOSIS OF EBV I WAS RELIEVED THAT IT WAS SOMETHING THAT WOULD GO AWAY CAUSE IT FEELS SO BAD IT HAS YOU THINKING ITS SOMETHING MUCH WORSE..BUT I SEE NOW THAT EBV IS NOT SO SIMPLE AS SOMETHING YOU CATCH AND THEN ITS GONE..THE FATIGUE CAN LAST A LONG LONG TIME...AND COME BACK LIKE IN MY CASE... AND FROM WHAT IM READING THE VIRUS IS LINKED OR COULD BE LINKED TO MANY THINGS....SOME DOCTORS CALL IT CHRONIC FATIGUE ...SOME DONT...ITS SO FRUSTRATING TO HAVE SOMETHING THAT NOONE UNDERSTANDS AND THERE IS NOTHING ANYONE CAN DO ABOUT IT...AND TO HAVE IT FOR SO LONG..AND NOW I HAVE TO QUESTION LOOMING OVER MY HEAD...WHY DO I HAVE POLYNUEROPATHY? AND WHAT CAUSED IT?...WELL THANK YOU FOR YOUR HELP I WILL BE SURE TO ASK MY DOCTOR ABOUT AN MRI...BUT WOW READING THIS SITE HAS SHOWN ME HOW HARD IT CAN BE TO GET ANSWERS...I DONT HAVE THE TINGLING AND ALL OF THAT JUST EXTREMEMLY WEAK LEGS WHICH COULD BE EBV STILL...WELL LIKE MY NAME SAYS..I JUST WANNA FEEL BETTER!!!
[quote] The manifestation of EBV are not fully understood. It sounds like a full work-up into what might be the cause of your peripheral neuropathy would be in order... [/quote]

[malaney]

I have the exact symptoms. Diagnosed ebv in 1994.
2 brother diagnosed non hodgkins. 8 years ago and 2 years ago, both had chemo and are doing ok.
I was thinking Guillien barre or cidp, the symptoms match these syndromes and they started 5 weeks ago.
I don't think it will be diagnosed unless I have a nerve biopsy. They do not think it is MS. Went to a virologist and the report came back with all kinds of viruses. Including CMV, Herpes Zoster as in shingles. This all started when my husband become ill in 1994.
13 years I have not been able to get well and it seems as though my immune system is collapsing.
I think the viruses cause many illnesses including MS. The question of the day is how do we boost our immune systems to fight these viruses? Especially when we may have been exposed to toxins and/or
genetically can't fight back? Also what has this virus become?
I know first hand being labeled with CFids may not be good.
Remember the diagnosis will affect the best options for treatment from your insurance company.
Viruses are tricky and there has been very little research done.
Neglected for to long this may be the beginning of an epidemic. Who is going to connect the dots?
Call it Lyme/cfids/Fibro/MS/ Cidp etc., etc. Any Thoughts or diagnosis?

[gipse]

if you live on a DIET of very sugary foods you will get fungal infections sometime with no symtoms at all
you dont give us a complete list of your symtoms?

1..STOP ALL SUGARS EVEN HONEY AND ALL FRUITS ETC for 6 weeks if you even have a tiny bit of sweet food it wont work because fungus needs sugar to live [bread has sugar in]


..THE BODY IS LIKENED TO A SWIMMING POOL __ph____levels________

if the ph of the body is to low bad FUNGI AND INFECTIONS will grow in the pool as in the body [this means to much acid in the body and the
causes of to much acid, all sugar [even fructose in fruits]
and acidic foods but not lemon for some reason lemons are the best thing for this high acidic condition of the body
and there are many more diseases that fungus causes because the body cant fight anything as in a swimming pool that has mold
and fungi growing in it
if the ph is corrected everything is fixed,
apart from nutrition but also
while the ph is not correct nutrition is not absorbed because the body cant cope
also low blood iron can stop absorption of nutrients
Sometimes malabsorption in the digestive tract causes sickness
a kinesiologist or a natropath may diagnose your condition quicker that a doctor

[gipse]

viruses toxins diseases and symptoms all caused by thrush [candida]

i had EBV diagnosed and cure by a kinesiologist and many many more viruses parasites infections low iron female problems [so many thing where wrong with me that i was no longer producing hormones in my body and my immune system was completely shutting down
i had along with the other 1500 symptoms [fatigue 20 hrs a day asleep] being my first hurdle........
20 years later i went on a sugar free diet for 6 weeks cured everything including most of my allergies and my aggressive behaviour now i am back to the calm coping thoughtful healthy person i was before