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My 5 Year Old son with dystonia

Post a new topicby livingwith on Mon Jun 08, 2009 2:23 pm

It started Dec 2008. Twisting to the right and right arm completly twisted and then screaming. This is every time he goes to sleep. All through the night. He has been in hospital 3 months up to now, still there with a baclofen pump fitted. Spasms still coming thick and fast. Any body who has been in same situation please help
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livingwith
 
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